Norah is still doing well, and still growing. We're waiting to hear back on progress that South Davis is making on getting the fancy-pants ventilator, but I know that they're working on it. It will be nice to have her closer to home again.
We met with South Davis on Friday to talk about what happened that put Norah back in the PICU at Primary Children's. Jeff and I feel much better after having been given a more comprehensive picture of the events that led to her transfer. They had a few takeaways on how to have responded a little differently, but it does seem like they did close to all they could at the time. She still has episodes of turning blue, and I hope that she simply grows out of them soon.
Hook me up with that child life specialists contact info so I can say thanks.
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Norah looks SO happy in these photos. She is doing well despite the little settle backs, I hope you can all be home as a family again soon as long as they can get to the bottom of why she does still turn blue poor little darling. x
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