Monday, June 3, 2013


Norah's ventilators: a sight for sore eyes.
This is really happening. Tomorrow morning (Tuesday), Norah will have been on the home vent for two weeks. On Wednesday, we'll be formally setting a discharge date. A DISCHARGE DATE!!

Am I nervous? Yes and no. We are so totally ready, but of course I have a natural amount of worry. Norah's life will now be in our hands. The reality of having a child dependent on technology and interventions, is that bad things can happen anytime and anywhere. They can happen at home or the hospital. They can happen in bed asleep or awake and active. They can happen under any circumstance. We have lived with this stress for the last two years... The only difference is that we'll now be the healthcare providers. And I couldn't be more thrilled.

We have had a lot of time to learn everything we could about Norah's needs. I can't tell you how many times I've been asked (even by doctors) if I'm in healthcare. I always giggle and tell them that it only seems that way because I know Norah really well. So we've learned to care for her, just as one would hope any parent would care for and love their child. Norah's needs just happen to be a little more complicated.

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