Thursday, July 12, 2012

Bright Eyed

Norah is definitely on the mend. After these last few scary days, she was finally able to play for more than two seconds. She even gave us some of those patented Norah Smiles. How I love this girl. Oh - and apparently she mouthed "dada" to Jeff when he was saying it and doing the sign for "dada". I still say her first word counts as when she did the sign for "eat", but maybe we'll give this one to him. :)

They attempted to turn down some of her support settings, but had to go back up. She isn't ready, and no one wants to push her. The good news is that she no longer needs sedation to relax. She's still getting steroids, antibiotics, Albuterol, and lots of CPT (chest percussion therapy/chest physiotherapy) but they seem to be helping.

And it seems that South Davis is really going out of their way on this one. The Respiratory Director, Rick (one of our favorites), is really diving in to determine what could have been done differently, and is also searching for a possible way Norah could have gotten sick. He is always great about investigating situations. He's also spoken with nursing and his RTs to get the full picture of what led up to Norah going back to the PICU.

Once Norah got sick, I don't think this trip to the PICU was avoidable. She has zero reserves in her lungs, so any interference or setback is a huge deal for her. It hits her exponentially harder than a healthy baby. BUT - the transport could have been handled differently. From now on, they're going to send off for Life Flight ground transport if Norah is in respiratory distress. When we left SDCH, Norah wasn't nearly as bad as when she arrived at PCMC. I am pretty sure it was from improper bagging, but I'm making sure that is addressed.

I also think I need to be pushier when it comes to troubleshooting Norah's issues. I had spoken to various SDCH staff members (mostly RTs) about things like trach changes, x-rays, and only using her bag with the PEEP valve, but my suggestions were all dismissed. I should have been pushier. I have learned my lesson. After all, when we did change her trach shortly after admission to the PICU, we found that there was a semi-soft plug in her trach that was interfering with ventilation. So while I prefer to be friendly and work with everyone as a team, I need to learn when it's time for no-more-Mrs.-Nice-Mom.
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